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Showing posts from December, 2020

Many Steroids

 I reached out to my neuro yesterday. I have been miserable since getting sick 2 weeks ago. I hurt all over. I have random numb spots. And the incontinence has returned. Some days are amazing. Some days you put on your paper panties and find the amazing parts on your own. Today I start steroids. They will be the equivalent to the amount I had via IV a few months ago, but in pill form. I will be taking 72 pills in the next 3 days. Wowza. The pharmacy thought the doc made a mistake. I will just be over here binge eating and not sleeping for a while. But no worries- I will feel better again sooner rather than later and that is amazing. I am so thankful for modern medicine. I am so thankful that my struggles are less than those of the MS warriors of the past. I am so thankful that I have the husband I do. He loves me through it. He empathizes. He holds me up. He reminds me how blessed I am. He keeps me smiling. And life is good❤️

Life is different now

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 Let’s start with the good. Since starting Aubagio, my migraines are like 100% better. That is amazing. I am not really angry anymore. I was so mad. I kept asking God why he allowed this, I mean, didn’t I have enough battles to fight with my body. Now, I am back to my motto of play the cards you are dealt and just keep drawing from the deck. The joy is not in the hypothetical win, it is in the playing of the game. So, everyday I get up and try to do the best I can with what I have. Somedays I KILL it (at least to me I do). Some days it kills me. I laugh about the struggles when I can.  Two week ago we had a wonderful vacation of relaxation at the beach. It was so much needed. It was good for the body and soul. We made some amazing new friends who we will keep forever. We got to spend a week with my self adopted brother and sister in law and their amazing kiddos. It was a perfect week.  On the way home, I started getting sick. The kids had had a cold, then Terry, and now i...