Life is different now



 Let’s start with the good. Since starting Aubagio, my migraines are like 100% better. That is amazing. I am not really angry anymore. I was so mad. I kept asking God why he allowed this, I mean, didn’t I have enough battles to fight with my body. Now, I am back to my motto of play the cards you are dealt and just keep drawing from the deck. The joy is not in the hypothetical win, it is in the playing of the game. So, everyday I get up and try to do the best I can with what I have. Somedays I KILL it (at least to me I do). Some days it kills me. I laugh about the struggles when I can. 

Two week ago we had a wonderful vacation of relaxation at the beach. It was so much needed. It was good for the body and soul. We made some amazing new friends who we will keep forever. We got to spend a week with my self adopted brother and sister in law and their amazing kiddos. It was a perfect week. 

On the way home, I started getting sick. The kids had had a cold, then Terry, and now it was my turn. I joked that I must have the man flu bc I was so sick- with a COLD. it is so different  getting sick when you have MS. It is like before I started treatment. Disposable underwear and all. I HURT. Like all over. I have random numb spots. I thought I peed myself the other night bc it felt like warm water was being poured on me. I was dry as a bone. I have to take more rest breaks again. But I am told this will normalize again. Just takes time. And this is all ok. This is life now. I am learning to navigate it all, and I will master it. It will get better. 

If you see me sporting masks in public from here on out (after the mandates stop)- just know- it is necessary to avoid the “man flu”! It is cool to be different! 

I will also be taking the covid vaccine as soon as it is available to my company. I am grateful to have the opportunity. The protection. Not only for myself, but more importantly for the most vulnerable among us. It is a means to an end of the pain so many have faced and are currently facing. We all need to do our part. Whatever that part may be. 

And me, I will keep learning. Sharing. LIVING. Loving. 


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