My Story: It is no step for a stepper


 I was talking with my friend “Ellen”(I must protect her privacy LOL) the other day, and she had a great deal going on. I said I am so sorry, I know it will be crazy. Her reply was, It’s no step for a stepper, and I am a stepper!” This was just another kindred spirits moment with my friend. I told her I do not hear that saying often, but I like to say it and it is one my mom often uses! It got me to thinking about my disease and my struggles. How I am and will always be more than a diagnosis. How every day is not hard. And on the hard days, It is no step for a stepper and my momma raised a stepper. 

You see, Ellen and I, we see people who have really big struggles. Struggles they may or may not recover from. We help them as much as we can. We have bonded through our love of these people. She reminded me of this phrase that is motivational to me. She is not a quitter. She adopted that phrase long ago, like me. And I am not a quitter. It really stinks to have to say no. To not go go go. To run out of gas. But I can handle it. More importantly, I can handle it and still be happy. I can find the joy in the little moments. In the quiet surrender, I can find peace. And on those days where I feel better, when I have more energy, I can do all of the things. I can pack more life in to one day than I can handle. And I can be ok with that. Most of the time. 

I know how lucky I am. I know, more than most, how bad it could be. I know how good it truly is.

Remember, It is no step for a stepper, and I will always be a stepper❤️

Comments

Post a Comment

Popular posts from this blog

My Story- The Year that Changed My Life

 We are a year in to this journey we never wanted to take. 1 year since my world felt like it may crumble around me. I can say I have MS. Sometimes without tears. I say it often bc I need to desensitize myself, I think. I also want to normalize it. Life is good, but there are struggles. Blogging helps release the stress. It also may help a new to MS’er one day. It is good to know that it is okay to mourn life as you knew it. It is ok to not be ok some days. I tend to come here when it is less ok. That is when I need the release of writing it down.  This last year of isolation and loneliness has been tough. I have learned that sometimes the relationships you thought were unconditional  come with conditions. There has been what feels like an irreparable divide in relationships that were the most important to me. And in the midst of that, I was told I may have a tumor, or a stroke, or MS. MS was in many ways the lesser of the evils I was facing. I am thankful for the diagnos...
Read more

My Scare- the MRI follow up

 So, I had my follow up appointment. Before my scans, I tried to prepare myself for it to have changes. I had 2 flares after all. I WAS NOT PREPARED. I wanted to be. Tried to be even. I was not. I had to go alone to my appointment, and there was a resident. She started by asking me if I had decided what medication I wanted to switch to. That was not the way to go. I just cried. You see, I did not know that would be a question. My lesions were not active. I HATE change. It got better from there.  Dr. Chenault came in next. She told me it was reasonable to presume the lesions were from my flares last fall. I do not have to change treatments yet. I have to see the pulmonologist next month. If she thinks my sickness and breathing troubles this summer were related to my aubagio, I will have to change. Then we will rescan in December. If pulm clears me and my scans are normal, I get to stay the course. If there are changes, we will face that then.  In other news, school has sta...
Read more

Many Steroids

 I reached out to my neuro yesterday. I have been miserable since getting sick 2 weeks ago. I hurt all over. I have random numb spots. And the incontinence has returned. Some days are amazing. Some days you put on your paper panties and find the amazing parts on your own. Today I start steroids. They will be the equivalent to the amount I had via IV a few months ago, but in pill form. I will be taking 72 pills in the next 3 days. Wowza. The pharmacy thought the doc made a mistake. I will just be over here binge eating and not sleeping for a while. But no worries- I will feel better again sooner rather than later and that is amazing. I am so thankful for modern medicine. I am so thankful that my struggles are less than those of the MS warriors of the past. I am so thankful that I have the husband I do. He loves me through it. He empathizes. He holds me up. He reminds me how blessed I am. He keeps me smiling. And life is good❤️
Read more