My Story: A little update

 First, thank you all for the support and prayers. I have finished the steroids. They helped. My migraines are still completely out of control. This may still be from med changes, it may be because I have had a great deal of external stress at work. Who knows.

Monday I was lucky enough to have one of those visual disturbance migraines. At least that is familiar and not terrifying. Not being able to walk independently was terrifying. 

I have decided and discussed with my provider that I will not take the generic again. I had another bottle of the name brand and I have stated it back. Hopefully my body will calm down now. The migraines, back pain, dizziness, weakness, fatigue. I am ready to feel better again. 

We have also been busy and I am keeping up so that is good. 

Kids had a dance at school Friday night. They had friends stay Saturday night. I took Katie-Nell shopping Sunday for her upcoming trip with KK to Dallas. She gets to fly on a plane. We are all going, but will be driving. She is beyond excited. I am too, I get to see my brother❤️ Terry and J.O. are going to a super cross event. The next weekend, we are planning to see our dear friends at their daughter’s basketball game out of state if that can still work out. 

We will continue to live life, make memories, rest when able. Go to bed early, and figure this all out. I know I won’t lay down and give up while ai wait for this to progress. I know I will fight to feel better. In know my provider will guide me as she is the expert. I know my fight is not as hard as so many others. I am just trying to keep life normal for my family, function a d perform normally at work, and maintain some semblance of control over the never ending “chores” at home. 

This too shall pass and life is overwhelmingly good. No matter what the days may hold. 

Some fun moments in the last month😁





Comments

Post a Comment

Popular posts from this blog

My Story- The Year that Changed My Life

 We are a year in to this journey we never wanted to take. 1 year since my world felt like it may crumble around me. I can say I have MS. Sometimes without tears. I say it often bc I need to desensitize myself, I think. I also want to normalize it. Life is good, but there are struggles. Blogging helps release the stress. It also may help a new to MS’er one day. It is good to know that it is okay to mourn life as you knew it. It is ok to not be ok some days. I tend to come here when it is less ok. That is when I need the release of writing it down.  This last year of isolation and loneliness has been tough. I have learned that sometimes the relationships you thought were unconditional  come with conditions. There has been what feels like an irreparable divide in relationships that were the most important to me. And in the midst of that, I was told I may have a tumor, or a stroke, or MS. MS was in many ways the lesser of the evils I was facing. I am thankful for the diagnos...
Read more

My Scare- the MRI follow up

 So, I had my follow up appointment. Before my scans, I tried to prepare myself for it to have changes. I had 2 flares after all. I WAS NOT PREPARED. I wanted to be. Tried to be even. I was not. I had to go alone to my appointment, and there was a resident. She started by asking me if I had decided what medication I wanted to switch to. That was not the way to go. I just cried. You see, I did not know that would be a question. My lesions were not active. I HATE change. It got better from there.  Dr. Chenault came in next. She told me it was reasonable to presume the lesions were from my flares last fall. I do not have to change treatments yet. I have to see the pulmonologist next month. If she thinks my sickness and breathing troubles this summer were related to my aubagio, I will have to change. Then we will rescan in December. If pulm clears me and my scans are normal, I get to stay the course. If there are changes, we will face that then.  In other news, school has sta...
Read more

Many Steroids

 I reached out to my neuro yesterday. I have been miserable since getting sick 2 weeks ago. I hurt all over. I have random numb spots. And the incontinence has returned. Some days are amazing. Some days you put on your paper panties and find the amazing parts on your own. Today I start steroids. They will be the equivalent to the amount I had via IV a few months ago, but in pill form. I will be taking 72 pills in the next 3 days. Wowza. The pharmacy thought the doc made a mistake. I will just be over here binge eating and not sleeping for a while. But no worries- I will feel better again sooner rather than later and that is amazing. I am so thankful for modern medicine. I am so thankful that my struggles are less than those of the MS warriors of the past. I am so thankful that I have the husband I do. He loves me through it. He empathizes. He holds me up. He reminds me how blessed I am. He keeps me smiling. And life is good❤️
Read more